My Epilepsy story an introduction

I had my first seizure when i was 18 months old and soon after was diagnosed with epilepsy, I have mainly nocturnal seizures either when falling asleep or waking but when I’m ill, upset or tired I will have daytime seizures and on many occasions i have injured myself from falling and hitting my head.  Throughout my life I’ve been on numerous medications, anti epileptic drugs, sedatives, anti depressants etc.. Nothing stopped my seizures and the side effects of the medications were horrible, I was constantly tired and sick.   I’ve been passed around from consultant to consultant, and not one of them knew me or what i needed so they either just threw more drugs at me which I’d already tried or tried to say i may not even be epileptic. An accident and emergency doctor once said to me that my epilepsy was an atypical case and that maybe doctors didn’t understand it so that’s why i was being passed around.  After spending most of the summer a year ago in hospital due to seizures then being told by a consultant i had to wait 18 months plus for tests before they could help i felt completely let down and abandoned, i mean I’ve had epilepsy  for over 30 years couldn’t these tests have been done before? what do i do for the next year and a half? so I turned to the internet and found that medical marijuana was being used to treat epilepsy, i tried it and guess what it works!!!

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6 thoughts on “My Epilepsy story an introduction

  1. I’m so glad you found relief through the use of cannabis. So many of us who suffer daily desperately need access to this holistic plant. I applaud you for using your voice and sharing your story! Testimonies like yours are what will finally free this medicine, and boy do I pray that that time comes sooner rather than later. Keep sharing, keep educating, and best of luck on your path to healing. ❤

    Liked by 1 person

  2. Kia Ora (HI)

    best wishes for your treatment with the herb.. its crazy that many countries (inc. Aotearoa/NZ) still dispute the curative/therapeutic value of cannabis, mostly based on lies & misinformation.
    I still heard ‘reefer madness’ B-S, about it.. an excuse to maintain prohibition.
    BUT the tide of change, is slowly but surely rising ! 🙂

    Like

  3. Thank you for sharing your story, for swinging by the “Ranch” and for the follow. We 💗 visitors especially ones who know all about being epi-warriors. Best of luck with your treatment. We have been experiencing good luck treating Elsa with CBD oil and hope we can cut back on the phenobarb at some point down the road.

    Like

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